Well, I know that it has been quite a while. I don't really update the blog much, but I think you all know where to find me. Facebook! Anyway, I do have a couple of things to report...Henry has had his follow up MRI done. We expected to have to wait a while for the results, but when you have Alli Summers on your butt, people seem to be very timely! HA-
They MRI Report reads:
"Extensive encephalomalacia in the central white matter with some thinning of the corpus callosum. Ventricular size is within normal limits. Myelination appears slightly delayed. No acute or focal abnormalities are seen."
This report is pretty much the same as we had around his problems after birth. Things have not worsened, or gotten better. This is OK. In unmedical language, this is how it was explained to me; If Henry's brain was a desktop computer, he has his monitor, keyboard, mouse, and tower. EVERYTHING THAT YOU NEED! BUT- His wires are a little messed up. He needs help training himself how to reroute his information. White matter is the metal inside of the cord, and Myelin is like the insulation around an extension cord. Delayed myelination means that the nervous system may not work as well or as fast because of possible short circuits.
We believe this can be overcome! Like I said, he has all of the main computer parts, its just learning how to get electricity to it.
So, what is the next step? We are prescribed to have a PT(physical therapy) and OT(occupational therapy) evaluations done. These evaluations will tell us ALOT! They will be able to pin point where and if we have any problems yet so that we can work on fixing them ASAP! I have an appointment for the OT next week. Children's is booked on Pt's for a while. They don't know when an opening will be, but will call me as soon as they have one. The OT evaluation will test finner skills mainly involving the upper body. This is great, because his pediatrician says that his upper shoulders feel a tad weak. we have been doing exercises to help this, but I look forward to learn more.
I have checked into the Access school here in little rock. As soon as we get his evaluations done, we will know if he will need this type of schooling. But it is just like daycare, but they work on him 5 times a week, from 8-3:00. We will see if this is necessary.
Ill keep you updated on his OT evaluation after next week. (Tuesday 11am)
Other than that, His follow up with his neurologist about his MRI is going to be April 2. Forever away!!
After all of this, we had to take Henry to the eye doctor. We have noticed that sometimes he seems a tad cross eyed. Ends up, we were right! But, in
Henry's case he isn't really crossed, just when he has a hard time focusing his eyes cross. This is good, and the doctor seems to think that it can be fixed with these tiny precious glasses! Bless his heart!!!
Other than all of this, we are good. I'm crazy just trying to deal with the unknown! Kent is crazy trying to deal with me, and Josie.... Josie is great! She just floats in her own world. She has no limits to her vocabulary we have found out. ha ha--- And just wants to be loved on and love back. She is a mess, but such a sweet girl, and great big sister!
If anyone knows anything about Henry's terms that I don't, please let me know. Any input is great and appreciated! Prayers are answered, so lets keep pumping them out people!! We love you and you will hear back soon.
The Summers
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